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I have had NERVE PAIN since 16 and at 22 years old I woke up with blurred vision in my left eye. I was diagnosed with Optic Neuritis. I saw the same Opthamologist for about 3 years and he almost dismissed me, even though my vision was deteriorating. I decided to seek someone else. I was told I had OSH. He showed me a picture of my eye and it looks just like the pictures online. I am terrified I will be entirely blind in my left eye. I have too many people who depend on me!!!!

Anyways, my question is this, DOES ANYONE WITH OSH ALSO HAVE NERVE PAIN?

My symptoms as follows:

-shooting pains (random areas, feels like hot stabbing knives, 5-15 seconds)
-deep, burning numbness in arms and legs
-sunburn feeling on skin or on scalp
-continuous sore muscles, mostly in back
-joint pain

I have been searching an answer for 15 years. I feel like Drs think its in my head... I need someone to say "ME TOO" eventually.

Hi,
I've just been reading this first page about other people's problems and I think this is what is going on with me also.
I have clear fluid that runs out my right nostril when I'm leaning forward usually or go outside where the air is colder.
I have had this going on for a long time now and can't find any help.
I saw one reviewer mention the name of Dr Tredway here in WA State and I have met him once but was denied in surgery for my spine by the Dept of L&I but I've seen his work on a friend and he is a great man, but then left UW and went to practice with Richard Wohens, a real Ah*** if you ask me and I watch Dr Tredway go down hill,
Anyhow, I don't know what to do, I am at St Joes for my primary care provider with my medicare plan and for 10 yrs now they have not helped me with one issue and now this leak stuff and the fact I've now lost most of my hearing since 2009 when I first tried to get help I've got nothing except a ENT last year who claimed he knew what was wrong with my a Dr Sorensen, well he's quit the idiot and left me worse than I was.
I can tell you this, when things are so bad that you start thinking about hanging it up for good well then I just don't know anything except we have a serious health care problem in this country, regardless of what they say about being the best, I am now recluse and just suffer everyday and all I have going for me is 2 cats, if it weren't for them I'd probably be dead.
I am so tired of everything, there just seems to be no hope here in Tacoma WA, St Josephs hospital is not so great but I do have to admit that after one of their so called specialist or ENT butchered up my sinuses last March 2016 in what he said was just a simple day surgery, well I ended up having to go to the ER at St Joes after his surgery to spend the rest of the day and night and I guess they saved me from bleeding out and suffocating on my own darn blood, so I give them their credit but it was sort of one of those obvious type situations like maybe having a bone sticking out of your head, but if you have something like completely clear fluid running out of your one nostril or after a surgery where the idiot put tubes in my ears and I was able to blow some goop out of my right ear through his tiny tube and after telling them since 2009 that I felt as if I had something in my ear, then take pics of it and show it to that ENT and STILL Nothing,
I am just going insane with this stuff, what does it take?
Hopeless, good luck friends, I know what your saying for sure..

I have been fighting bleeding from presumed histo spots in both eyes for 20 years. I am currently 69 years old. The spot in my right eye bled first and was on the edge of the center of vision. I am probably a poster boy for the advances in treatment as I have had hot and cold lazer, long term prednisone, and countless injections. I have experienced three good eye surgeons over this time period including one at Mayos clinic and two in my home community. Treatment has been timely and aggressive when needs. My left eye spot is away from the center of vision and one Lazer treatment about 19 years ago arrested it. My right eye spot has needed constant treatment but seems to be improving the past year. One reason may be that I retired from a very stressful work situation. I did not realize until the past year or two that stress was a contributing factor or I might have retired years ago. I did not realize until finding this site today that arthritis may have a connection as well. My problem with arthritis are growing considerably. I am also a Vietnam veteran and am reading that their may even be a connection to the 14 months I spent in that country. I have read that vietnam has a high rate of histo among the Asian countries. I would be curious if there are other vietnam veterans on this site. Thanks

Hello Candi. I came across your post and couldn't get over how much our symptoms are alike. I have lost the ability to sleep, I don't feel anything which is weird because I'm usually very alert and cautious. I'm very concerned with this. I can't even sleep, when I close my eyes it's like I'm awake. Please email me if possible!

"The document is really amazing and has helped me get proper insight into matters that were of great concern to me as a biochemistry student here at Bugema University in Uganda."

Just wondering how u and your husband are doing? My wife has been diagnosed with CD Oct 3...I know how u guys are feeling... Just wondering how things are now

Hi
I am Kenyan and have been trying to find out if there are other Kenyan children with the TS syndrome and how I could possibly meet their parents so that we can share our experiences.
My niece who was born in 2001 was diagnosed with TS in December, 2016 through Karyotyping test.
She is 4" 1 inch, weighs 31 kgs and has no ovaries. Her mum, my late sister, passed on in 2007 and I took over the parenting role and am bringing her up. I noted from when she was 4 years that she was much smaller than her age group and when I took her to Hospital I was told she was normal and there was nothing to worry about. However, by the time she completed her primary school I did not see much of a change in her growth so I decided to get full tests done including the ultrasound. I have the same dilemma in that the growth hormone is too expensive to afford and of course not covered by Insurance. However, she is on estrogen pills which she takes daily.
She has always been a very confident and bubbly girl, until she went to high school and noted the way the other girls treated her. She then realized that she was different so her self esteem went down and her grades drastically dropped. It is not easy and I would like to meet other Kenyan parents who have children with this condition.

Ok firstly let me just say WE ARE WHAT WE EAT this has to be the most important thing to understand. Eat beautiful colourful food, eat live food only, by that I mean food which has grown from the earth, deffinately no animals (which will sit in your guts and rot) especially if constipated, drink lots of water, drink warm liquids ie warm water with lemon slice or some kind of tea as warm fluids are very cleansing. For the people with constipation; get food grade Epsom salts, make sure good quality and must be ok for internal use. Boil water wait till your enough for drinking, get a tall cup add 1 teaspoon of Epsom salts and fill your the warm water, fill up the glass to the top.
Now the best bit....drink it, it's pretty gross but so worth it. Do it a couple of times a week and see if it helps, it definitely should.
Secondly you must read this book, you can find a free pdf on the net. This book will change your life. You will begin to understand how the body works and hopefully realise how so much of what we know is wrong. Anyway read the book guys, its called The Amazing Liver and Gallbladder Flush by Andreas Moritz, there is soo much great info inside that book, simply amazing, honestly. Lastly I must just say, to put it simply just think of our bodies as a whole bunch of tubes! Yep im for real, think about it, everything in us is basically a tube. What is one thing that can cause issues with tubes.....blockages. So can you imagine how many blocked tubes we all have in our bodies from eating and drinking the shit we do these days. Also we are meant to potty at least once a day, at least! Our bodies are supposed to hold only about 3 meals yet the average person these days holds about 12 meals. That can't be good for anyone, especially if you eat meat and it sits inside you for days rotting. Anyways hope this helps someone

If I'm not mistaken, a person reaching the speed of light will go into 4th dimension and will see the entire time line of the universe, also this person will be able to see the entire 3-D world folded flat in the same way we look at a 2D drawing.
Reaching that speed is impossible but what happens when you get really close to it ?

Yes, information about how to obtain the answer key is available in the Teacher Preparation Notes. Also, I am nearly finished preparing a new and improved version of this activity, which I hope to finalize and post within the next week or two. Meanwhile, if you would like to have this revised version, please email me at iwaldron@upenn.edu.

Ingrid

Hi Tracy,never had a patch,but started drinking coffee with cinnamon in it helps my pressure in the back of my head.god bless

Agree on Dr. Rosario Trifilietti. 'Dr.T' is a wonderful PANDAS doc; now in Ramsey NJ.
New website http://pandasinstitute.org/

is there an answer key?

Hi I had first medical abortion pill today but now scared to take 2nd pill couse nurse said I mite end up in hospital losing 2 much blood pls help