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A Random Walk
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Wow. This is an amazing post. I would say that you are becoming a leader here, which is also interesting in terms of a educatiobal trajectory -- from survival to thriving to enabling others to survive and thrive.
This is,a real life horror story,, prion disease and trying to find an,answer to this .
Ive been to sleep studies , two nuerologists, they cant find out whats wrong, all blood work normal no auto immune diseade no huntingtons etc, the very few clinics that test for cthese symptoms are in california and ohio ,lucky me,,doctors ask do i know my family history , no sbecase my family history is not known, the bad news is yes alot were from Italy on my dads side but no one knows who they are ,anither possibility. Im bed ridden daily and researchers in california are so annoying not returning my emails. Im hallucinating no sleep this us crazy , and no damn doctors know why , incredible ,
This is america ill make myself heard to even if i have to write the president i will be heard my family as well,this is crazy that there is no help unless u have the best insurance or are a millionaire .God puts doctors here to help people not shun them over there symptoms,i will make sure whatever happens to me people will be tested the right way for this disease and doctors will take pple seriously because im not giving up even if my symptoms get worse, this disease will have a name , and thank you to all the rude doctors that i sent emails out to with no reply in california,im know im not a celebrity but how funny do things change when you have the best in life , how,sad, even the rich pple at fund raisers,are fake cause they havent helped me.
Look up sunflower syndrome, which falls under photosensitive epilepsy.
Also, look up Irlen Institute. They make colored lenses.
Look up Irlen Institute. They make colored lenses. It works!
Look up Sunflower syndrome, which falls under photosensitive epilepsy.
Also, the Irlen Institute makes color tinted glasses.
During my daughter's EEG, during the strobe light test, they also tested 5 different colors. We found that the red, orange and yellow lights all showed seizure activity/spikes on the EEG monitor, but the blue and green strobe lights showed normal EEG activity.
My daughter has done the hand waving in front of her eyes/on forehead thing for at least 5 years. When outside, she will turn and face the sun and do this. When inside, overhead lights make her do this, as well.
She has had 2 grand mall seizures after doing her forehead habit in the sun.
We kept telling her neurologist that the hand waving and seizures were connected. She disagreed and told us to see a psychologist for her hand waving. We disagreed and did not do this.
Through the internet, we found "sunflower syndrome". It falls under photosensitive epilepsy. Look on the internet for some answers (most neurologists haven't heard of sunflower syndrome or won't address it). I wonder if your daughter has photosensitive epilepsy.
Through research on the internet, I found the Irlen Institute. They filter out offensive/bothersome wave lengths of light allowing the brain to function more normally and help it heal. This filtering will calm the brain and reduce stress on the central nervous system.
Based on this info, I asked our neurologist if we could test for this. She agreed. Our daughter had an EEG done. During the EEG they did the strobe light test (with eyes closed) for 5 seconds. Regular strobe light color caused immediate and definite spikes of seizure activity on the EEG monitor. Next they put a red colored disc in front of the strobe light and did the same thing. She got the same result of immediate and definite spikes of seizure activity on the EEG monitor. They also did yellow and orange, with the same results. Then they did blue, and after that green. Both the blue and green discs showed no seizure activity. It was normal!!
So if we get blue or green lenses, this should solve her light sensitivity issues! Dare we even hope that this could help or even solve her epilepsy????
We are going to contact the Irlen Institute and see if their colored lenses could help us.
I think this is the glasses you have been searching for!
My daughter has done the hand waving in front of her eyes/on forehead thing for at least 5 years. When outside, she will turn and face the sun and do this. When inside, overhead lights make her do this, as well.
She has had 2 grand mall seizures after doing her forehead habit in the sun.
We kept telling her neurologist that the hand waving and seizures were connected. She disagreed and told us to see a psychologist for her hand waving. We disagreed and did not do this.
Through the internet, we found "sunflower syndrome". It falls under photosensitive epilepsy. Look on the internet for some answers (most neurologists haven't heard of sunflower syndrome or won't address it). I wonder if your daughter has photosensitive epilepsy.
Through research on the internet, I found the Irlen Institute. They filter out offensive/bothersome wave lengths of light allowing the brain to function more normally and help it heal. This filtering will calm the brain and reduce stress on the central nervous system.
Based on this info, I asked our neurologist if we could test for this. She agreed. Our daughter had an EEG done. During the EEG they did the strobe light test (with eyes closed) for 5 seconds. Regular strobe light color caused immediate and definite spikes of seizure activity on the EEG monitor. Next they put a red colored disc in front of the strobe light and did the same thing. She got the same result of immediate and definite spikes of seizure activity on the EEG monitor. They also did yellow and orange, with the same results. Then they did blue, and after that green. Both the blue and green discs showed no seizure activity. It was normal!!
So if we get blue or green lenses, this should solve her light sensitivity issues! Dare we even hope that this could help or even solve her epilepsy????
We are going to contact the Irlen Institute and see if their colored lenses could help us.
Please think about having your child tested. We would NEVER have known if and what colors were triggering her!!!! For the first time, I feel empowered regarding my daughters condition!!
My daughter has done the hand waving in front of her eyes/on forehead thing for at least 5 years. When outside, she will turn and face the sun and do this. When inside, overhead lights make her do this, as well.
She has had 2 grand mall seizures after doing her forehead habit in the sun.
We kept telling her neurologist that the hand waving and seizures were connected. She disagreed and told us to see a psychologist for her hand waving. We disagreed and did not do this.
Through the internet, we found "sunflower syndrome". It falls under photosensitive epilepsy. Look on the internet for some answers (most neurologists haven't heard of sunflower syndrome or won't address it). I wonder if your daughter has photosensitive epilepsy.
Through research on the internet, I found the Irlen Institute. They filter out offensive/bothersome wave lengths of light allowing the brain to function more normally and help it heal. This filtering will calm the brain and reduce stress on the central nervous system.
Based on this info, I asked our neurologist if we could test for this. She agreed. Our daughter had an EEG done. During the EEG they did the strobe light test (with eyes closed) for 5 seconds. Regular strobe light color caused immediate and definite spikes of seizure activity on the EEG monitor. Next they put a red colored disc in front of the strobe light and did the same thing. She got the same result of immediate and definite spikes of seizure activity on the EEG monitor. They also did yellow and orange, with the same results. Then they did blue, and after that green. Both the blue and green discs showed no seizure activity. It was normal!!
So if we get blue or green lenses, this should solve her light sensitivity issues! Dare we even hope that this could help or even solve her epilepsy????
We are going to contact the Irlen Institute and see if their colored lenses could help us.
Please think about having your child tested. We would NEVER have known if and what colors were triggering her!!!! For the first time, I feel empowered regarding my daughters condition!!
Yes. Look up the Irlen Institue. They have tests and glasses for this. It works!
My daughter has done the hand waving in front of her eyes/on forehead thing for at least 5 years. When outside, she will turn and face the sun and do this. When inside, overhead lights make her do this, as well.
She has had 2 grand mall seizures after doing her forehead habit in the sun.
We kept telling her neurologist that the hand waving and seizures were connected. She disagreed and told us to see a psychologist for her hand waving. We disagreed and did not do this.
Through the internet, we found "sunflower syndrome". It falls under photosensitive epilepsy. Look on the internet for some answers (most neurologists haven't heard of sunflower syndrome or won't address it). I wonder if your daughter has photosensitive epilepsy.
Through research on the internet, I found the Irlen Institute. They filter out offensive/bothersome wave lengths of light allowing the brain to function more normally and help it heal. This filtering will calm the brain and reduce stress on the central nervous system.
Based on this info, I asked our neurologist if we could test for this. She agreed. Our daughter had an EEG done. During the EEG they did the strobe light test (with eyes closed) for 5 seconds. Regular strobe light color caused immediate and definite spikes of seizure activity on the EEG monitor. Next they put a red colored disc in front of the strobe light and did the same thing. She got the same result of immediate and definite spikes of seizure activity on the EEG monitor. They also did yellow and orange, with the same results. Then they did blue, and after that green. Both the blue and green discs showed no seizure activity. It was normal!!
So if we get blue or green lenses, this should solve her light sensitivity issues! Dare we even hope that this could help or even solve her epilepsy????
We are going to contact the Irlen Institute and see if their colored lenses could help us.
Please think about having your child tested. We would NEVER have known if and what colors were triggering her!!!! For the first time, I feel empowered regarding my daughters condition!!
help, how do i reconnect to the class server?! i've been playing in single player but want to get back in the class community now ... when i try to connect, it says there are no servers .. is that because i'm using Hford wireless and not BMC, where thomas set it up .. ?? thanks so much!! :)
Would you like to help build a public libray so we can eventually get an enchated book :)?
How understanding and forgiving should we be with social
"blunders" that can be exhibited with this syndrome. Can they all be taught with consistent loving attention or are we to
accept them due to the condition?
A Struggle:
I feel as if I am Tom Hanks from Cast Away where I am thrown on a deserted island left to die. I skimmed through the beginner’s guide and its recommended strategies are to find shelter, food and safety. I have trouble doing all of this because all the natural resources are not that easy to find and require mining/scavenging up in the mountains or obscure places in the map. Your tools don’t even last forever; your wooden pick-axe eventually breaks and you have to make a new one. You can’t eat trees or flowers; you actually have to eat real food. The only “food” I’ve managed to find so far are 2 mushrooms. I may try to eat some raw meat next time and take my chances. You become desperate when you're starving.
The “noises” of zombies and monsters and the immbolizing darkness at night is kind of scary. I can't wait to make fire and a bed. I feel very insecure.
An Accomplishment
To increase your chances of survival I have learned that when its dark out and you don’t have shelter it’s best to find a makeshift one. Find a cave on a mountain, or dig a hole somewhere- it’s safer that way. I climbed onto the top of a mountain and tried to build myself a dirt-house. I managed to build a crude barrier of some sort, I had some trouble putting the roof in too. Eventually, I heard a zombie coming and completely freaked out and started digging downward into the mountain to hide. I kept digging until I couldn't see anything and was trapped inside the mountain. I think I will probably starve to death now because I can't get out.
An Observation:
In the beginning (like our cave-man era ancestors) you start with the most primitive world possible. You have to try to fulfill your basic needs such as food, water, shelter and (weirdly) human contact. I felt like I took comfort in the fact that I was in multiple player server and that I wasn’t completely alone. I was online with Cindy for a little while and it was kind of nice to have someone to talk to. (kind of like how Chuck Noland from Cast Away had Wilson the Volleyball for company). Comes to show us how we humans are truly social animals :P When you see predators and don’t have weapons, the smart thing to do is to RUN. Don’t step into burning fire and don’t drown in the water. These are all real life common sense things that for some reason didn’t seem to dawn on us college kids during class because we all kept dying hahaha.
The fact that I know gamers on minecraft have created entire cities and civilizations on this game shows how it has the ability to mirror the trajectories of our own human civilization and how we developed.
In many ways, survival in this virtual world is highly realistic.
A Question:
How does my 5 year old cousin and his friends play this game so effortlessly? It’s not that easy.
Can minecraft be used in a simulated wilderness survival course?
(Minecraft) Social equality, foundations for "Project Library", and eventually... enchantment book/table
A Struggle
I think the struggle right now is no longer a personal one because I have learned how to be self-sustainable. The struggle right now is more of a collective one in terms of community building. How do we come together to form a whole? Like Professor Lesnick said, how do we transition from playing as soloists to playing in an orchestra? I currently see 2 main challenges to collaboration and minecraft world development:
1. The differences in minecraft skill levels within the class (inequality)
2. The analogue world preventing us from being on the server at the same time when we’re not in class. (although I don't know if this problem can be solved)
I attempted to help solve problem one during my last day on minecraft.
An Accomplishment
It all started yesterday when I had my first minecraft play date with Isabelle and Veronica and together we built a community farm. After that, I was inspired to become a business philanthropist. As a result, I built a homeless shelter (near the HI sign) with a treasure chest supplied with bread and pumpkin pie. My placement group and I thought it’d be good to start a library project on minecraft. I think I have set the foundations for this to happen. I have transported a few cows from my farm and created an animal pen next to the homeless shelter so they can be bred with wheat then slaughtered for leather/steak. I have set aside a specific treasure chest for storing paper that can be made from the sugar cane growing in the community farm as well as my personal farm. I have also put up several signs to try to make up for the lack of instructions within the game.
We need this library because there is such a thing called an enchantment book in minecraft. This enchantment book is enhanced when surrounded by 15 bookshelves and when placed on an enchantment table it can enchant swords, armor, pickaxes etc. And probably make zombie killing be as easy as swatting flies ~ sounds pretty magical
More info about the "enchantment book" from this site:
http://www.wikihow.com/Make-an-Enchantment-Table-in-Minecraft
An observation
Not to sound patronizing in anyway, but there is a big disparity within our class in terms of who is “well-off” on minecraft world and who is still trying to survive one day at a time. This disparity is stunting our collective development because there are still some people who are trying to fulfill basic needs. These people are untapped sources of labor for community building. You could identify it as the income disparity between the “wealthy” and the “poor” in the analogue world.
After spending this week playing minecraft, my experiences seem to elucidate the idea of access and social inequality in my mind. In the begining we were all a bunch of wild cave men and women behaving out of self-interest. I remember NapoleonBonaparte (Robert) asked me for diamonds and wool during day 2 of minecraft and I told him "sorry, need to take care of myself first." Now, alot of us have homes, farms, advanced mines but others are still helplessly lost. I think I am probably in upper-middle/upper-class position in minecraft world as are several other people who are in similar, if not even better positions.
There seems to be a certain saturation point when more cows/more food/more “stuff” is not going to help you advance any further in the game. Things become less exciting when all you're doing is mining. That is a time when one should behave less out of self-interest and consider a project that helps the collective good. Therefore I am trying to “pay taxes” by feeding the hungry and equal out the playing field by ameliorating some of the differences in skill level that are preventing development. The purposes of the community shelter are to provide for the “homeless and struggling” and help them fulfill their basic needs. That way we can start working towards our collective goal- sooner.
At this moment, i think the trajectory of our community development should be as follows:
1. Improve poverty in minecraft world
2. Build a library
2. Make enchantment table/books
3. Pimp out weapons
4. Turn off peaceful mode & kill some monsters
A question
How do we improve inequality in minecraft world?
How do we build solidarity, construct a library and eventually acquire an enchanted book?
thank you!!!!!!! the dance is a language argument is brilliant.
My mother died in Octobert last year from suspected CJD, and are concentrating on Sporadic Fatal Familial. It is not a pretty disease, she got sick and died with 18 months. She also had psychiatric symptoms, loss of bladder and bowel, myoclonus and she lost her function to walk and talk. She died after only 6 weeks in hospital. I not long attended the National CJD conference in Australia and it was fantastic. There were no medication they could give her, nothing stopped her pain or her myoclonus, it was that bad she was put on life support to protect her airway, from there she went to pallitative care. This disease is quiet rapid, progresses fast and there is no cure. If any of you think you could have it...remember it is mostly genetic, but if there is no mutation found on codon 129 you will be have no major risk at getting it, as it means it is not genetic and generally you will not be tested unless you have a family history. There is a Sporadic FFI, but i think it has only affected like 8 people in the world since 1995.
a) I still am deep underground and I can't jump out of the huge pit. I can't break any of the grey blocks. I wish I could fly in this multiplayer version, but I realized that's impossible. I'm trapped.
b) I mananged to jump up all the way on top of a hill in creative mode, rather than resort to flying. I think I'm getting used to the jump command now and how and when to use it in regards to diagonally placed blocks.
c) This game is starting to get really boring for me. I don't want to keep on planting random flowers and failing at making lovely houses in creative mode. I guess this is not really my kind of game, I prefer simpler creative games like dress-up and stuff online.
d) I've already blogged for seven days like the syllabus asked, I think. I wonder if I can stop playing/blogging soon.
In addition to what you mentioned, my memories of certain events are very detailed and '3D'. With all the sounds, odors and spatial characteristics of the actual events. It is different than photographic memory because I cannot recall every bit of my history in this manner, but the ones that are truly are like re-living the experience again. It may have something to do with the mild to medium Auditory-Tactile Synesthesia I also seem to possess.
It is really nice to know there are others out there. I was in my teens before I realized everyone did not see the world like I did. It was twenty years after that before I realized there are others that do.
a struggle:
I lost my house and even though I was finding all kinds of supplies in the jungle like cocoa beans and sugar cane and things like that, I had a sense of anxiety the entire time because I knew that I was not going to find my way back. The farther I went and the more new things I explored, the surer I was that I was losing a sense of how to return to where I came from. I thought about building a new house and just starting again in a new place. However, it made me sad to lose my old neighbors Isabel and Sarah. I had gotten familiar with my old rickety house in the side of a mountain.
an accomplishment:
I have not put the plan into action yet, but I had the idea of trying out the Hansel and Gretel strategy and forming some kind of trail of objects like torches in order to know my way back to my house. I might also use invaluable items like blocks of dirt so that people aren't tempted to pick them up. That way, during each session I can explore all that I want and then head back to home base at the end of the day.
an observation:
I noticed that living right next to a river and in the midst of mountains might not be the best location for a home. They always say that the most important thing about choosing a house is location, location, location, so perhaps once I get my bearings in terms of sense of direction, I can go to a place with more open space for gardening and keeping animals. I saw someone's house today with both a garden and a pen of cows with baby cows in it. Having a lot of space seems key.
a question:
I really like the idea of having a community center along with a community garden and a farm. I was wondering if there was anyone who wants to volunteer just building upon stuff they have already made? It seems like that would really jumpstart the process and also give incentive to those who have already made lots of progress to participate in the project. Also, that way, people who have not made so much progress can have a set place that they know they can go to in order to find shelter and eat.
Me too. 8 is a jerk, and 9 is self-righteous; 1 is male for me. I also hate when my age is a prime number (but maybe that is just the mathie in me). When I am in full migraine, my brain is full of very vivid memories, that all taste like poison. I am drawn to quad-symmetric structures (mandalas) - they taste good and make me a bit euphoric.
I had no idea that everybody doesn't think this way until my husband and I were watching a discovery piece on the subject about 10 years ago. I was agreeing with what they were saying and my husband of 15 years was shocked.
"Really? You have this?"
"Ummm....you don't?"
Of course for about an hour thereafter he was quizzing me on what colour letters and numbers are. Colour is not that strongly associated with me, more gender and personality.
Struggle: While mining today, I neglected to follow Veronica's advice to never, ever, ever dig straight down, and I paid dearly for it. While digging up some Red Stone, I fell into a lava pit and lost all of my most valuable items. It was so frustrating to see much of my hard work disappear like that in an instant.
Accomplishment: After our class discussion about projects we could undertake as a group, Veronica and I thought that we could lay the foundation for a community farm, and when I later ran into Wendy, I invited her to join us as well. Together, we selected an area by the sand town because it was in familiar territory for most of us, and we all pitched in material: I provided wheat seeds, Wendy provided pumpkin seeds, and Veronica provided melon seeds. In just half an hour, we accomplished so much. I can't wait to undertake an even larger project with the rest of the class.
Observation: The environment seems so much richer now. There are gardens and forests everywhere in my corner of the map now. After being so strapped for resources, it's nice to see how plentiful they are again, and I hope that we can all stay in this environmental mindset for the remainder of the project.
Question: Could we talk more about the intersection of the "analogue" and "digital" worlds in the Minecraft context?
Maddy, I found your house! I used your furnace to cook all of my food, which I haven't been able to do yet! Soo THANKS!! Also, your house looks great. I love the lily pads :-)
Thought I would blog while I wait for the rain to pass :-)
Struggle: I am trying to find the giant "HI" sign and the place where Robert's house is so that I can get back into a place where I can interact with other players since, as of now, I have been pretty anti-social up in the mountains. However, I am having a REALLY hard time! I have absolutely no idea where I am or which direction I came from or even if I am heading in the right direction at all....
Accomplishment: I realized why my blog posts have been appearing on the front screen even thought I have been clicking "create post" while I am in the post for our whole-class thread.... I have to add a comment instead! Duh! Although this isn't really a Minecraft success, it was still pretty exciting :-)
Observation/question: I could REALLY use a map. It's pretty impossible to navigate any world without knowing where you are in relation to the other things around you. I understand the idea of having to explore it for yourself, but it's pretty frustrating when you get lost! I wonder if there is anyway to make one?
I'm still exploring the Creative mode on my own (single player mode) since I am kinda scared of the thought of going out there being killed by the zombies or starving to death - I might eventually when I feel more confident with my navigation and crafting skills. I built a house with double door, and made a bed and a wardrobe inside too but by the time I was able to lie down on the bed it was morning again. I was really glad that whenever I came up with something I thought I might need then I could find it in the inventory (ladder, door trap, glass pieces for my garden) - so the way it works in MC is very similar to how things are normally solved outside of the game. I started with making foods too. Some one mentioned in class this morning that sometimes it's hard to figure out why certain recipes were set up as such - and I totally agree. I think I am 99$ dependent on the wiki right now but I hope as I get familiar with the game I can start thinking about certain ways that it works too and try things on my own.
Question: Can we "craft" a friend? I am kinda lonely.
a) I can't go back into multiplayer mode, because when I enter the game, I'm still stuck in this one dark area underground and I am quickly on the brink of total starvation. No matter which direction I turn to, no matter how much I press the space bar, I am stuck in place. I should not have destroyed so much of the ground beneath me the last time. I don't know how I'll be able to find that community center unless I die.
b) I managed to clear an entire patch of grass on a green land in creative mode. Now I can start building a new house/planting a new garden.
c) It was night time (I think, though I was underground) in multiplayer mode and daytime in single player. Huh!
d) I wonder when R and the others will start collaborating in minecraft.
If I were them, I wouldn't do this stupid thing! Who would want to expose themselves to a bunch of awful, dirty old men and immature man-children? They're probably ugly themselves, anyway. Who in their right mind would be worried about being called ugly and then post videos on youtube konwing that they'll be thousands of nasty stuff in the comments? This "sexting" and "exposing/slut-shaming business" are part of the reason why our culture today is in the toilet, as my old latin teacher used to say. Why willingly objectify yourself if you know most of popular culture is already trying to do that to you? This is what one prominent feminist media critic referred to as "self-objectification."
I am going threw the same thing, and my brother just got done one night before me, telling my mother about this, and it happened to me way before him, how he heard a demon girl constantly talking to him, well i read about a girl God, who was once with Another God named Zeus, and she constantly talked to my brother, i cant remember her name, but to warn you, things in my life now put me in danger, i fell inlove with a God, and things gotten worst and yea i been having what you all been having, but now i feel as a snake hiding away, i get bullied in school. People act as demons wich makes me hide in my room all night, so i fall alseep and wake up and this happens to me, i felt as someone rubbing me kept getting thoughts of it being Jesus, because i kept calling his name wanting to be in heavan. He was rubbing me but i was so scared i prayed and i cried and screamed. I know what it's like being a cute lil jesus girl with brown curly hair, and girl's always being jealous of me, treating me bad saying im treating them bad, disrespecting me alot, and it's always diff color people. They say how they are jewish, im like okay, i start studying about this alot. Along time ago this happened to me and it was a man in front of me, and like a spidery thing behind him. Guys we are identical, we got to pray, if we see demons, let us pray, because i read so much about this, and if you dont pray your stuck there forever. And i mean dead!!!! Be safe guys, and to be safer is being there feeling Jesus c rubbing you, but when i felt it it felt like too much rubbing to say, but oh well pray guys.
I have seen Invisible War. I actually saw it this semester. Thanks for bringing it up, it's a fantastic documentary! National media loves celebrate the successes of our nation's military, but it refuses to shed light on its failures. One of which is the failure of our nation to keep our own soliders safe from each other. Our nation totes itself has having one of the best military program in the world and yet rape is a prevelant thing. The statistics for rape in the military are underestimated, because so many go undocumented because of fear. Law and Order gives a voice (an odd voice to say the least, but a voice nevertheless) to those too afraid to speak. By showing the rape of a member of our military on primetime national television, attention is brought to the issue. But it is not simply enough to bring light to the issue, a political game must be played. Invisible War spoke to this plight by illustrating the struggle of rape victims to bring about change in military policy through our corrupted political field.
I feel bad for making you come all the way to my house to bring me chickens. I can find your house instead. I live not too far from Isabelle's house, my neighbor built a big gate around the mountain I live on. It's kind of like a big compound.